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Archiver > GENEALOGY-DNA > 2006-05 > 1146762266


From: "PeterLangley" <>
Subject: Re: [DNA] Haemochromatosis and R1b and Plague
Date: Thu, 4 May 2006 18:04:26 +0100
References: <3d9.194f79e.318a9706@aol.com>


Janet,
I very strongly back up what Nora has said.
Change your doctor.
Jaundice is one result of having haemochromatosis.
Arthritis and kidney failure are others.
It's of no use to you waiting to develop one of these complaints before
being diagnosed, by that time it is too late.
Now that I have been diagnosed, I have my blood tested every six months for
jaundice, and have a scan every year to check no damage has, or is, being
done.
Change your doctor and get tested.
Peter.

----- Original Message -----
From: <>
To: <>
Sent: Thursday, May 04, 2006 12:30 AM
Subject: Re: [DNA] Haemochromatosis and R1b and Plague


>
> Janet,
>
> Your husband's cardiologist is wrong. It sounds like he hasn't updated his
> knowledge of Hereditary Hemochromatosis (HH) since medical school. He
> probably
> believes it's an old man's disease and women can't get it. What he is
> looking
> for is bronze skin and some people who are more advanced with HH will have
> the bronze skin. I did not because my case was in the early stage. If you
> wait
> until jaundice sets in, you may too late since HH can lead to liver
> cancer
> if HH is not treated. Run, do not walk, to a hematologist or a
> gastroenterologist. You might want to consider changing to a more
> knowledgeable
> cardiologist. I know I would. Your medical doctor should do the testing.
> Just keep in
> mind that insurance companies have been know to discriminate with those
> who have
> HH even though if a person is treated early and properly, his/her life
> span
> is the same as one who does not have HH.
>
> A good website is _http://www.americanhs.org_ (http://www.americanhs.org)
> .
> It's the American Hemochromatosis Society and has a lot of info.
>
> E-mail me off list and I will explain more if need be.
>
> Nora
>
> In a message dated 5/3/2006 4:31:31 P.M. Eastern Daylight Time,
> (mailto:) writes:
>
>
> Can someone tell me if jaundice is always present with hemochromatosis?
> My
> red headed father had a ruddy complexion and always said giving blood
> made
> him feel better. I wonder about that. I wanted my husband to be tested,
> but
> his cardiologist refused saying he would be jaundiced if he had the
> condition. I couldn't find the answer to this in any online sites about
> hemochromatosis.
>
> Thanks.
>
> Janet Crain
>
>
>
>
>
>
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