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Archiver > GENEALOGY-DNA > 2007-11 > 1195233038


From: Bonnie Schrack <>
Subject: Re: [DNA] Press release: deCODEme to offer test of a million SNPs
Date: Fri, 16 Nov 2007 12:10:38 -0500


Ann wrote:
>
> The list of states came from the consent agreement for ordering the
> test at
> http://decodeme.com . As far as I can tell, the only way to see the
> material is
> to create an account and (pretend to) order a test. Then you are
> presented
> with the above list of states and statements like this:
>
> "By creating an account, you warrant and confirm the following: you
> have all
> necessary legal capacity under the laws of the state of your residence to
> enter this Service Agreement; you are who you say you are; you reside
> in the state
> to which you have asked deCODE to ship the Genetic Scan sample kit;... "
>
> I assume the restrictions are based on pre-existing laws about medical
> genetic tests. I wasactually going to post a message asking you about
> those --
> didn't you write a paper on the topic?

Yes, but my paper did not extend to finding out the laws of each state
on the subject! It described the issues around direct-to-consumer
genetic testing that are being debated, and the positions taken by some
of the parties involved. Perhaps the Genetics and Public Policy Center
or the Genetic Alliance might be able to direct us to information on
specifics like this. Maybe I'll give them a call, since I have taken
the day off. But don't everyone get your hopes up, I may not be able to
find out anything yet.

I would very much appreciate it if someone would post a longer extract
of the consent agreement, so we can find out exactly what it says. I
imagine there are some people on this list who are ordering the test
right away? Since I might want to order it later, I don't know that I
want to create a username and password now, to gain that access, since
that could confuse things later on.

Bonnie

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