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Archiver > GENEALOGY-DNA > 2007-11 > 1195427505


From: "Ken Nordtvedt" <>
Subject: Re: [DNA] Press release: deCODEme to offer test of a million SNPs
Date: Sun, 18 Nov 2007 16:11:45 -0700
References: <be0.2464acd1.346ef890@aol.com><003101c8285b$e810f6e0$6400a8c0@Ken1><03e201c82a34$f54820b0$640fa8c0@Villandra2>


----- Original Message -----
From: "Dora Smith" <>
To: <>
Sent: Sunday, November 18, 2007 3:47 PM
Subject: Re: [DNA] Press release: deCODEme to offer test of a million SNPs


> Have they specifically banned consumer access to information about our OWN
> genetic risks, and is there a workaround, like getting a doctor to sign
> off
> on the test?
>
> If so, what would be the difference between banning access to the test
> results by the person who ordered the test, and just banning the test, and
> why did they do the former and not the latter?

If they can bill you for an office visit, you may get doctors to sign off on
you seeing the medical implications of your results from deCODE, although
the doctor could very well know less about the results than you do. This
happened to me with regard to obtaining a gene test which had both
alzheimers and cardiac implications. I seem to have two of the normal gene
alleles in this regard, so I may have a good number of future years of
genetic genealogy hobby fun to look forward to yet. I appreciate my
doctor's cooperation.

The specific states were demanding genetic counseling from official genetic
counselors, one of our newer "professions", as a condition to hear the
medical implications of one's test results.

It is really funny the hoops some of these medical school labs operate
under. The lab that did my gene test was not authorized to say anything
about the alzheimers implications of this gene's alleles, although that
information is out there all over the literature and the internet and in
Science Daily. They were authorized to only comment on cardiac issues. So
there is really not a free flow of information in our society. We have to
push and push, and then push some more to keep things free and open.

I assume they did not ban the actual taking of the tests because it was
probably argued that various authorized parties which are looking out for us
will under some circumstances want to acquire such information for our good.

Ken

>
>>
> Yours,
> Dora Smith
> Austin, TX
>
>
> ----- Original Message -----
> From: "Ken Nordtvedt" <>
> To: <>
> Sent: Friday, November 16, 2007 8:20 AM
> Subject: Re: [DNA] Press release: deCODEme to offer test of a million SNPs
>
>
>> Please elaborate. What possible rationale did these states use? Take it
>> to
>> the Supremes; this must violate one or more of our sacred rights. I
>
>> Ken
>>
>> ----- Original Message -----
>> From: <>
>> To: <>
>> Sent: Friday, November 16, 2007 6:43 AM
>> Subject: Re: [DNA] Press release: deCODEme to offer test of a million
>> SNPs
>>
>>
>>> Rats! Certain states are limiting consumer access to the genetic risk
>>> calculations from the genome scan. These are Arizona, California,
>>> Connecticut,
>>> Georgia, Maryland, Michigan, New Jersey, New York, Rhode Island, and
>>> Wyoming.
>>>
>>> Ann Turner
>>>
>
>
>
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