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From: "Ken Nordtvedt" <>
Subject: Re: [DNA] CNN article: The government has your baby's DNA
Date: Sun, 7 Feb 2010 11:34:02 -0700
References: <8CC763A8FCC1BF4-31CC-1C389@webmail-m061.sysops.aol.com>


The road to hell is often paved with "good" intentions. Sometimes we can't
have our cake and eat it, too.

That does not subtract one iota from the tragic scenarios you mention that
could maybe be prevented with more information in the right hands..

Ken

----- Original Message -----
From: <>
To: <>
Sent: Sunday, February 07, 2010 11:29 AM
Subject: Re: [DNA] CNN article: The government has your baby's DNA


>I have to trust that the government had good intentions when enacting
> this policy. But I do believe in informed consent and in educating the
> parents. To get a clear idea why the DNA is useful, see:
> http://www.marchofdimes.com/aboutus/22684_51920.asp and
>
> http://www.marchofdimes.com/professionals/14332_15455.asp
>
> I think it would be heart wrenching to see a child who is otherwise
> healthy suddenly have a seizure and become a vegetable because nobody
> thought to test for
> Medium-chain acyl-CoA dehydrogenase deficiency or to watch an
> apparently normal child who was not tested for isovaleric acidemia
> suddenly develop permanent neurological damage when a low protein diet
> and supplements could have prevented the disease. Until recently, if
> you happened to live in the wrong state, your baby would not be tested
> for some of these metabolic disorders. Some states may still be
> catching up. Maybe these diseases are rare, but each one costs
> society. The only people to gain from these tragedies are the ambulance
> chasing lawyers who seek "wrong diagnosis" cases.
>
> So what should be done with these blood spots? Should they be: returned
> to the parents? stored for safe keeping? claimed by the child at
> maturity? used for future government studies? used for paternity and
> child support cases? used for forensic identification purposes? given
> to next of kin after death? destroyed? Who owns this DNA anyway?
>
> Kathy J.
>
>
>
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