Hypophosphatasia-L Archives

From: "Margery Callen" <>
Subject: [Hypophosphatasia-L] WELCOME TRACEY
Date: Mon, 10 Aug 1998 15:12:57 -0400

Hi Tracey:

Welcome aboard to our little support group here of Carol, Del and myself.
It sure takes a long time to connect with we Hypophosphatasians. You will
find that the three of us are great at supporting one another even though
our symtoms arrive at different times in our lives and some are quite
different. Del and I are the closest with the typical symtoms of Adult
Hypophoshatasia. Carol is the unique one with what is thought of as the
Pseudohypophosphatasia (we guess). Both Carol and I have no idea which
ancestor could have possibly passed this genetic disorder on to us even
though both of us have done geneology on our families.

You have been in great contact, I notice with both Carol and Del — we all
are very interested in the research that all of us have done in the past.
I will send you my medical history in the next mailing.

Welcome again — Marge

_____________________

Hello-

My name is Tracey Sandrock and I found your email address and posting on
the
web. I have hypophosphatasia and so do my son, daughter and father. I am
34,
my son is 7, my daughter is 12, and my father is 60. About a year ago I
started a support group through the MAGIC Foundation. I have also recently
started a web site which links to the foundation.

The URL is: http://members.tripod.com/~OneBusyMom/index.html

Here is the link:
<A HREF="http://members.tripod.com/~OneBusyMom/index.html">Hypophosphatasia
Support Home Page</A>

I hope that you will check out my page and contact the foundation. We have
children and adults within the organization. I know it can be a great help
to
talk to someone.

Take care

Tracey Sandrock
Hypophosphatasia Support

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• [Hypophosphatasia-L] WELCOME TRACEY by "Margery Callen" <>