Hypophosphatasia-L Archives

Archiver > Hypophosphatasia > 1998-08 > 0902846271


From: "Carol Clapshaw" <>
Subject: Re: "Carol Clapshaw" <kadda@solomon.org>: [Hypophosphatasia-L] Welcome
Date: Tue, 11 Aug 1998 07:37:51 -0700


Dear Del,

Ah I thought that my pulse rate was probably some how related. I wish it
was slower but that isn't in the cards for me.

I think the cardiologist thinks I am some kind of couch potato. I think it
would still be high even if I was a jock.

Oh the tomato sauce. It is a two day affair. It goes back on the back
burner tonight. It is coming along nicely. Tonight I will make Penne
Telefano. Noodles with telephone wires. The wires are mozzerella cheese.
It is great fun for kids but I think the adults like it even better.

I talked to my sister about the teeth today. She doesn't have many teeth
left. Her bottom teeth are wobbley.
She told me that she had two teeth "demineralize" as a young adult. She
said the crumbled like a bar of soap. I think she needs to get tested.

She has always been pretty healthy with no bone problems but I am now
suspicious about her teeth.

Can we send blood samples to Dr. Whyte for testing? My husband could draw
the blood and send it from his lab. We are use to shipping "perishables".

Hope you have a good day, too.

Carol
-----Original Message-----
From: Delmar P. Sieber <>
To: <>
Date: Tuesday, August 11, 1998 6:38 AM
Subject: Re: "Carol Clapshaw" <>: [Hypophosphatasia-L]
Welcome

>Dear Carol,
>My pulse does tend to be on the high side. Usually in the 80's, when busy
>or anxious can be in high 90's. When I was on the calcium channel
>blocker for bp my pulse was slower. Calcium blockers will do this.
>
>another tooth story, my brother was washing my face before supper and
>pulled a tooth. I'm sure it didn't need much help
>
>Good news for your friend. Did you get your tomato sauce done?
>
>Have a good one, Del
>
>On Mon, 10 Aug 1998 13:56:04 -0700 "Carol Clapshaw" <>
>writes:
>>Dear Del,
>>
>>I am beginning to feel like a hypochondriac but my curiosity will not
>>let me
>>stop exploring this.
>>
>>Do you by any chance have a rapid heart beat. Mine has never been
>>below 80.
>>When I was in elementary school they used me as an example of a
>>resting
>>heart beat and then they checked it and said, "Oh never mind.":-)
>>
>>I have always been a racer. A pulse of a 100 is not unusual for me.
>>Somehow I think it might be a result of the H.
>>Thanks for the info.
>>
>>I think the Calcium Channel blocker slowed me to a near stand still.
>>
>>The tomato pot is still bubbling. It will be a blessed day if I don't
>>burn
>>anything.
>>
>>Take Care, Carol
>>-----Original Message-----
>>From: Delmar P. Sieber <>
>>To: <>
>>Date: Monday, August 10, 1998 1:49 PM
>>Subject: Re: "Carol Clapshaw" <>:
>>[Hypophosphatasia-L]
>>Welcome
>>
>>
>>>Carol,
>>>Accupril is a ACE inhibitor that dilates your artery and veins.
>>Certainly
>>>both the systolic and diastolic pr. should be controlled. A high
>>>diastolic pressure means your heart has to work harder to pump blood.
>>>del
>>>On Mon, 10 Aug 1998 13:06:48 -0700 "Carol Clapshaw"
>><>
>>>writes:
>>>>Dear Del,
>>>>
>>>>I am wondering about the BP too. I am not sure if accurpril is an
>>>>calcium
>>>>channel blocker or not. I think I will call the cardiologist today.
>>>>
>>>>I think they tried me on about six medications before I could
>>tolerate
>>>>one.
>>>>
>>>>The interesting thing about my bp is that it is my diastolic
>>pressure
>>>>that
>>>>is really high. I don't know what that means but I don't like it.
>>>>
>>>>I'll let you know what I hear from the Doc.
>>>>
>>>>Carol
>>>>-----Original Message-----
>>>>From: Delmar P. Sieber <>
>>>>To:
>><>
>>>>Date: Monday, August 10, 1998 10:01 AM
>>>>Subject: "Carol Clapshaw" <>: [Hypophosphatasia-L]
>>>>Welcome
>>>>
>>>>
>>>>>Greetings,
>>>>>I noticed several of us(including myself) have high blood pressure,
>>>>any
>>>>>connection with our disease?
>>>>>I was on calcium channel blockers for many years but was switched
>>to
>>>>ACE
>>>>>inhibitors. I take prinivil, verylow dose of 2.5 mg/day. Seems to
>>>>keep
>>>>>my pressure very adequate.
>>>>>
>>>>>Del Sieber
>>>>>
>>>>>Dear Tracey,
>>>>>
>>>>>I have been on the phone for the last half hour telling my daughter
>>>>in
>>>>>law
>>>>>and my husband about you and your family.
>>>>>
>>>>>I will give you my daughter in laws email address as soon as they
>>get
>>>>>hooked
>>>>>up.
>>>>>
>>>>>I am glad that you mentioned your problem with high blood pressure.
>>>>I
>>>>>have
>>>>>been having trouble too. I wondered if my blood pressure was
>>somehow
>>>>>connected with the hypophosphatasia. I just don't have the typical
>>>>>hypertension profile. I thought it might be related to pain as
>>blood
>>>>>pressure does rise when you are in pain.
>>>>>
>>>>> What are you taking? I am taking Accupril. I was on Posacar but
>>>>it
>>>>>was
>>>>>pulled from the market. I have wondered if Calcium Channel
>>blockers
>>>>>might
>>>>>be the wrong thing for me. The cardiologist does not know I have
>>>>>Hypophosphatasia.
>>>>>
>>>>>I have so many questions for you. I will follow through with more
>>>>>emails!
>>>>>
>>>>>Sincerely, Carol
>>>>>
>>>>>
>>>>>--------- End forwarded message ----------
>>>>>
>>>>>_____________________________________________________________________
>>>>>You don't need to buy Internet access to use free Internet e-mail.
>>>>>Get completely free e-mail from Juno at http://www.juno.com
>>>>>Or call Juno at (800) 654-JUNO [654-5866]
>>>>>
>>>>>
>>>>
>>>>
>>>
>>>_____________________________________________________________________
>>>You don't need to buy Internet access to use free Internet e-mail.
>>>Get completely free e-mail from Juno at http://www.juno.com
>>>Or call Juno at (800) 654-JUNO [654-5866]
>>>
>>
>>
>
>_____________________________________________________________________
>You don't need to buy Internet access to use free Internet e-mail.
>Get completely free e-mail from Juno at http://www.juno.com
>Or call Juno at (800) 654-JUNO [654-5866]
>

This thread: