Hypophosphatasia-L Archives

Archiver > Hypophosphatasia > 1998-10 > 0908970164


From: Dana Yount <>
Subject: [Hypophosphatasia-L] [Fwd: OI Foundation]
Date: Wed, 21 Oct 1998 07:42:44 -0400


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Christy,
I'm forwarding an e-mail from the OI Foundation with Dr. Whyte's
address. There's also a good article that you can get from them if you
e-mail them and sent them you're address.

Take Care,
Dana

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To: Dana Yount

Thank you for contacting the OI Foundation.

The voluntary heallth foundation that deals directly with issues of
hypophosphatasia is the MAGIC Foundation (Major Aspects of Growth in
Children). They can be reached at 1-800-362-4423 and the executive director is
Mrs. Tracy Sandrock. The chairman of their medical advisory council and an
expert in metabolic bone conditions is Dr. Michael Whyte. Dr. Whyte can be
reached c/o The Shriners Hospital for Children, 2001 S. Lindbergh Blvd., St.
Louis, MO 63131.

There is a good article about hypophosphatasia in the Primer on Metabolic Bone
Diseases (3rd edition), page 326-328. Please send me your mailing address and
I will be able to mail you a copy of the article as well as a "Fact Sheet"
about hypophosphatasia that provides a general overview of the condition.

As far as I know, a diagnosis is obtained by an analysis of x-rays, a physical
exam, and measuring ALP (the enzyme alkaline phosphatase) through a blood
test. odontohypophosphatasia is a related condition where the child has only
dental problems but no skeletal changes.

Please let us know how we can be of further assistance.
Mary Beth Huber, Information Coordinator

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