Hypophosphatasia-L Archives

Archiver > Hypophosphatasia > 2000-03 > 0952133509


From: "Margery Callen" <>
Subject: [Hypophosphatasia] Canadian Hypo Web Site
Date: Fri, 3 Mar 2000 20:31:49 -0500


Hi Everyone:

I would like to inform everyone on this mailing list that Debbie Taillefer
and myself have just launched the Canadian Hypophosphatasia Society web
site.

On this web site is Dr. Michael Whyte's lay language description of
hypophosphatasia that was given to the parents and patients at last year's
Magic Foundation July conference in Chicago. He was kind enough to view the
site and wished to make a few changes to this document. Anyone who has
received this document well knows just how great it is for all of us who are
trying to understand this bone disorder.

I have been told by Tracey that most people on this list have received from
the Magic Foundation an order form for the 6 hr. video of last year's
conference. Here in Canada, Debbie and I know of only six individuals who
are associated with this list. If you Lisa Loewen, Anne Power or Joan
Curtiss would like this video please let Debbie or myself know so an order
form or information can be sent to you.

Tracey, shortly will be linking her U.S. site with the Canadian site and
vice versa for those who would like this connection.

Marge
http://www.homestead.com/hypophosphatasi

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