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Archiver > NORTH-TX > 2000-11 > 0973271942


From: "Brenda Messer" <>
Subject: Inherited Medical Conditions in the Messer lineage
Date: Fri, 3 Nov 2000 12:19:02 -0500


Hello Friends and Family

I hope that each of you are well.

I just wanted to let you know that I have not forgotten you. I have had
many things on my agenda for the past 6 weeks and have had to let quite a
bit of my mail go unanswered.

I have been asked by many people for more information on the CMT and TN
since my post about these conditions in September.

These conditions are evident in other family groups, but the physician that
I am working with has isolated a
new gene that has never before been found in any research group in any of
these disorders. This gene is evident in the three families that he has
been studying for over a year now and also in 3 families who live in Oregon.
My husband's grandfather was in a wheelchair with CMT when I first met him
in 1965. His younger brother has it very badly [he just had to retire on
disability]. There are many cousins that have definitely been identified as
having one or both conditions, with one being only nine years of age.

So far I have had responses from people far and wide and have found that it
is very evident in not only the descendants of the Messer Family who
settled in Haywood County, NC, but the Messer Family who settled in Hawkins
County, TN and two other family lines that are linked to the mountains of
NC. The NC and TN families most likely have a common link, as there were
two Christian Messers and one is at least 10 years older than the other.
They both were in the same proximities in eastern NC in 1771. I have long
thought that they might be cousins or uncle / nephew. I have my Christian's
father, but know nothing about his lineage. I often wonder if both families
were "hatched" somewhere.

Here are some links where you can read about the inherited medical
conditions that I am helping the neurologist with.

CMT
http://www.ninds.nih.gov/health_and_medical/disorders/charcot_doc.htm
http://www.charcot-marie-tooth.org/
http://search.iwon.com/commerce/directory.jsp?categoryid=57124&alias=/alias/
--search page
http://www.ultranet.com/~smith/CMTnet.html
http://chorus.rad.mcw.edu/doc/00288.html
http://www.cmtint.org/
http://www.cmtint.org/signs.htm this one shows a typical foot
of the CMT patient
http://healthlink.mcw.edu/article/921392067.html
http://www.charcot-marie-tooth.org/whatis.htm
http://www.charcot-marie-tooth.org/cmt.htm
http://www.charcot-marie-tooth.org/hnpp.htm


TN
http://www.ninds.nih.gov/health_and_medical/disorders/trigemin_doc.htm
http://www.tna-support.org/
http://www.bgsm.edu/bgsm/surg-sci/ns/tn-hfs.html
http://www.tna-support.org/Defiition.htm
http://healthlink.mcw.edu/article/921990870.html


Tourettes Syndrome
http://www.ninds.nih.gov/health_and_medical/disorders/tourette.htm
http://www.angelfire.com/ok/onedayatatime/
http://healthlink.mcw.edu/article/922670759.html

Diabetic Neuropathy - just for reference
http://healthlink.mcw.edu/article/921725216.html


We need all of the medical conditions that are known in the Messer family
lines, especially the members who have or had the conditions, CMT /
Trigeminal Neuralgia [TN] / and also Tourettes Syndrome. The main focus of
the physician is on the CMT and TN. I have also included the Tourettes
information as it is also a tic disorder and Diabetic Neuropathy.

I also need as much family information as possible, genealogical data, that
I can get to include into the file. Any help is appreciated. The
neurologist is also looking at the prevalence of diabetes in the family
line, since it also causes a "neuropathy".

If you wish to contact the neurologist with specific questions, his name is
Dr. James Lewis. His practice is at:
55 Medical Park - Suite 106
Franklin, NC 28734
828-369-7268
828-369-4488 (FAX)


My thanks is extended to everyone who has responded with questions and
information.

Brenda Messer




Messerville Mayor Home Page
http://members.fortunecity.com/messervillemayor/

Messerville Gazette Pages
http://www.fortunecity.com/millennium/ironbridge/1170


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