SOUTH-AFRICA-L ArchivesArchiver > SOUTH-AFRICA > 2000-03 > 0954398092
From: Janet Melville <>
Subject: RE: Retinitus Pigmentosa
Date: Thu, 30 Mar 2000 08:34:52 +0200
I would be interested in this - a friend of mine also suffers from this and
it seems that his sons will now also inherit it. It comes out in the Comley
family. I have where I know they have it made a note on the families who
have proferia (spelling) and also heart diseases. It is essential to know
that you might have this as you all know the problems that you can have if
you receive the wrong medication.
A case in point on my husbands side he had a Marais grandmother and some
of the Marais were accused of being lazy but on doing research i found out
that they actually relate back to a Ferreira and that they actually had in
some form or other heart problems and some have had bi passes etc and that
the laziness is actually getting tired and having to sit down or rest. I was
interested because it would affect my children and they should know about
and then could have check ups.
Dept of Computer Science and Information Systems
University of Port Elizabeth
P O Box 1600, Port Elizabeth. 6000
Tel: 041-5042652 W: 041-379-2077
From: Dalene Oertel [mailto:]
Sent: 29 March 2000 06:36
Subject: Retinitus Pigmentosa
Hi Jennifer and friends,
My family and ancestors also have a number of Retinitus Pigmentosa cases. I
have done research on this and the details have been sent to Sister Baartman
a few years ago. I have identified a number of possible progenitors who
might have brought it to my family in South Africa.
Is there anybody else who has done research on ancestors who suffered from
it? I know there are various types of RP and that it originated from more
than one source but it would be interesting to compare notes and see if
there is an overlap of ancestors.
Please contact me off the list.
----- Original Message -----
From: Jennifer Lloyd <>
Sent: Wednesday, March 29, 2000 5:47 PM
Subject: Re: Re:Eye problems
> Hi Val
> I just scrolled though my mail and read the problem.
> My parents are first cousins and past down the Retinitis Pigmentosa gene
> me. I am loosing my sight, but I have a wonderful friend, my guide dog,
> Lacey. The RP Foundation funds research into genetic disorders of the eye,
> not only RP. The research being done at the Medical School,in Cape Town.
> Sister Letia Baartman, the Genetic Sister, is extremely helpful and has
> everything at her finger-tips. Also, Claudette Medefint, in Johannesburg,
> a good person to chat to. She is on the National Exec of the RP Foundation
> and has limited vision herself.
> Thinking of you
> Jennifer Lloyd
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