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Archiver > TNSCOTT > 2001-01 > 0980354074


From: "Marian Sarantha" <>
Subject: Re: [TNSCOTT] Daughter
Date: Wed, 24 Jan 2001 09:34:34 -0700
References: <3.0.6.32.20010123203327.007c5760@pop.mindspring.com>


Hello, Rae: This sounds like hemochromatosis? The disease strikes people
of northern European descent and is sometimes called "the Celtic disease".
Several older people in our small town have been diagnosed with it. If
that's what it is, there's a great deal of information on the web.

Sorry to hear about your daughter; I know what one of my close friends is
going through.

Regards, Marian in Wyoming

----- Original Message -----
From: Rae <>
To: <>
Sent: Tuesday, January 23, 2001 9:33 PM
Subject: [TNSCOTT] Daughter


> Thank you to all who are praying for my daughter.
> Here is the update on her. She has a rare blood
> disease. They found this Friday. Her liver has
> been damaged and possibly her heart. This disease
> attacts the brain also.
> Here is what she says about it.
>
> I will have to have what is called
> Phlebotomy (removal of her blood) 1-2 times a week until the iron levels
> are down to normal. (This
> could take as long as 6 months - 2 years) After that I will have to go
> every three months for the rest of my life.
>
> Everyone else needs to be tested eventually to make sure they are only a
> carrier. Someone is a carrier in our family and that is why I have it now.
> When the kids are a little older or maybe this summer I will have them
tested
> before any damage to the organs is done.
>
>
>
>
>
>
> Rae Davis-Smith
> http://www.angelfire.com/de/LawDog/index.html
>
>
> ==== TNSCOTT Mailing List ====
> Rae Davis-Smith
> List Administrator
>
>
> ==============================
> Add as many as 10 Good Years To Your Life
> If you know how to reduce these risks.
> http://www.thirdage.com/health/wecare/hearthealth/index.html
>
>

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